Yesterday I started my first day of Avonex. The nurse, Veronica, came over to train my parents, one of my best friends, my darling boyfriend and myself how to inject the drug. It went pretty well and having my support group really helped me hold it together. I feel like God knew what he was doing when he made us. I'm really blessed to have wonderful parents,an amazing boyfriend and great best friends.
I say all was well for most of that evening, my legs were bothering me but not unbearable at least until I got home after dinner....
My darling boyfriend brought me home, I wanted to take a shower so that I could relax. Now if anyone knows me knows I love hot steamy showers however with being diagnosed, I can no longer do the extreme hot environments because it can cause an episode to happen. So that means no HOT showers, no saunas and I have to even becareful when I'm outside now during the summer. So as I took my shower it was on warm, I was doing ok my legs were still a lil wobbly but I thought I was fine. Until I was drying myself off and my legs gave out on me :( .
I cried, my mom heard me and said what happened and I told her that my legs gave out on me. And she got sad but what else are you left to do? I got myself together and got UP. Yes it hurt my knees when I fell, Yes once again I felt embarrassed however I cant just stay there.
I was told that one side effect of the disease modifying drugs are depression. Personally, I feel it is real easy for a professional to slap many labels to people who have a condition. I feel like anytime you have change in your element or you do not operate like your "usual" self, anyone could be sadden by that. I want to be a fighter against the disease. Yes I will get knocked down, mentally and physically but I'm refusing to stay down.
I pray that God continues to give me strength. I am so blessed and happy by His Grace in which that has gotten me this far. I am once again mentioned blessed for my loved ones, they give me the inspiration to proceed to carry on. I loved them more than they will ever know. Until next time :D
Later beauties
Nikki
Veronica was great!!! I got all teary eyed but i held it together for you sis! You are a wonderful, beautiful, strong individual. I hope your body reacts well with the meds.Love You!
ReplyDeletegood luck nikki! im glad the nurse was able to show everyone how to use the syringes. im also ecstatic that Mayra was able to be there too!! im praying for you Nikki and i hope the medicine works and helps. Keep me in the loop. thanks.
ReplyDeleteHi Nikki ~ I saw you were following my blog and I thought I would just stop by and say hello. I love your attitude about being a fighter, MS will definitely push your limits but I think that in the end you will be so much stronger and more determined to succeed than you ever thought possible. Hope all is well ~ Steph
ReplyDeleteNikki keep strong. Proud of you for keeping strong & its ok to cry. Take it one day at a time. Love how your family & loved ones are right by your side. Support is wonderful. Have a good day hun :-)
ReplyDeleteNikki,
ReplyDeleteAvonex was the DMD I tried when I was first diagnosis with MS. I wanted to try that one because it was once a week. I was on it for six months; I hope Avonex work for you. I do not want to frighten you, but please do not ignore how it affects you mentally. The side effect that it can cause suicide is very true. God's grace saved me. One of the many symptoms of MS is depression and it does not help when some of the medication such as Avonex can cause depression on top of dealing with MS depression. You are the same age as my youngest daughter and if there is anything I can do to help you cope with living with MS please do not hesitate to email me or ask what you want of me on my blog.