Hey beauties!
So this past friday 7/23 was my 25th birthday! I must say I am truly blessed to have made it this far in life. I am so grateful for my boyfriend,parents, best friends and host of coworkers and family members. My coworkers gave me a surprise 25th bday luncheon and it really made me cry tears of joy. With everything going on this year I just had no idea they were planning it for weeks!!!
My boyfriend took me to a great dinner and we even danced a little. I had alot of fun. I received many gifts and birthday wishes. Hmmm never knew 25 could taste so good! ;D
Wednesday, July 28, 2010
Friday, July 16, 2010
When it Rains it pours...but the Rainbow follows ♥
Hey beauties!
that is what I caught myself saying over and over..When it rains it pours. Sometimes the pain and numbness is out of control! Crying, huffing and puffing...but then somewhat of peace breaks through. The images that collide in my head such as the smile of my boyfriend, my wonderful hard working parents and brother, my best and close friends hugs, the laughter of their children along with my Goddaughter. That's when the rainbow peeks through after the rain.
MS affects not only the person who is dx with it but also all of the loved ones. I try to remember, as hard as this may be for me, I know it is rough on my loved ones as well. God is so good though because we are such a great support system. I know God has a big plan for us, and I am hanging in there for the journey!
Many blessings beauties
that is what I caught myself saying over and over..When it rains it pours. Sometimes the pain and numbness is out of control! Crying, huffing and puffing...but then somewhat of peace breaks through. The images that collide in my head such as the smile of my boyfriend, my wonderful hard working parents and brother, my best and close friends hugs, the laughter of their children along with my Goddaughter. That's when the rainbow peeks through after the rain.
MS affects not only the person who is dx with it but also all of the loved ones. I try to remember, as hard as this may be for me, I know it is rough on my loved ones as well. God is so good though because we are such a great support system. I know God has a big plan for us, and I am hanging in there for the journey!
Many blessings beauties
Sunday, July 11, 2010
1st day of Avonex
Yesterday I started my first day of Avonex. The nurse, Veronica, came over to train my parents, one of my best friends, my darling boyfriend and myself how to inject the drug. It went pretty well and having my support group really helped me hold it together. I feel like God knew what he was doing when he made us. I'm really blessed to have wonderful parents,an amazing boyfriend and great best friends.
I say all was well for most of that evening, my legs were bothering me but not unbearable at least until I got home after dinner....
My darling boyfriend brought me home, I wanted to take a shower so that I could relax. Now if anyone knows me knows I love hot steamy showers however with being diagnosed, I can no longer do the extreme hot environments because it can cause an episode to happen. So that means no HOT showers, no saunas and I have to even becareful when I'm outside now during the summer. So as I took my shower it was on warm, I was doing ok my legs were still a lil wobbly but I thought I was fine. Until I was drying myself off and my legs gave out on me :( .
I cried, my mom heard me and said what happened and I told her that my legs gave out on me. And she got sad but what else are you left to do? I got myself together and got UP. Yes it hurt my knees when I fell, Yes once again I felt embarrassed however I cant just stay there.
I was told that one side effect of the disease modifying drugs are depression. Personally, I feel it is real easy for a professional to slap many labels to people who have a condition. I feel like anytime you have change in your element or you do not operate like your "usual" self, anyone could be sadden by that. I want to be a fighter against the disease. Yes I will get knocked down, mentally and physically but I'm refusing to stay down.
I pray that God continues to give me strength. I am so blessed and happy by His Grace in which that has gotten me this far. I am once again mentioned blessed for my loved ones, they give me the inspiration to proceed to carry on. I loved them more than they will ever know. Until next time :D
Later beauties
Nikki
I say all was well for most of that evening, my legs were bothering me but not unbearable at least until I got home after dinner....
My darling boyfriend brought me home, I wanted to take a shower so that I could relax. Now if anyone knows me knows I love hot steamy showers however with being diagnosed, I can no longer do the extreme hot environments because it can cause an episode to happen. So that means no HOT showers, no saunas and I have to even becareful when I'm outside now during the summer. So as I took my shower it was on warm, I was doing ok my legs were still a lil wobbly but I thought I was fine. Until I was drying myself off and my legs gave out on me :( .
I cried, my mom heard me and said what happened and I told her that my legs gave out on me. And she got sad but what else are you left to do? I got myself together and got UP. Yes it hurt my knees when I fell, Yes once again I felt embarrassed however I cant just stay there.
I was told that one side effect of the disease modifying drugs are depression. Personally, I feel it is real easy for a professional to slap many labels to people who have a condition. I feel like anytime you have change in your element or you do not operate like your "usual" self, anyone could be sadden by that. I want to be a fighter against the disease. Yes I will get knocked down, mentally and physically but I'm refusing to stay down.
I pray that God continues to give me strength. I am so blessed and happy by His Grace in which that has gotten me this far. I am once again mentioned blessed for my loved ones, they give me the inspiration to proceed to carry on. I loved them more than they will ever know. Until next time :D
Later beauties
Nikki
Friday, July 9, 2010
Falling..
So I am becoming more and more clumsy these days. I mean I do laugh at myself when I trip over nothing and I'm around my comfort zone until today...
Today I parked my car in front of my house and I was moving it so my father could park his car there, then all of sudden I landed on the ground and my left hand caught me (if that makes sense). My neighbor came over and helped me and kept asking if I were ok and I said yes. I was so embarrassed, as soon as I got in the house I cried.
I know its like Nikki its not a big deal people trip all the time. the part .that gets to me most is I cant remember it. like I cant remember how I fell or why, I honestly thought I reached the last step...but the good news is I'm ok and I will continue to keep track of these things.
Today I parked my car in front of my house and I was moving it so my father could park his car there, then all of sudden I landed on the ground and my left hand caught me (if that makes sense). My neighbor came over and helped me and kept asking if I were ok and I said yes. I was so embarrassed, as soon as I got in the house I cried.
I know its like Nikki its not a big deal people trip all the time. the part .that gets to me most is I cant remember it. like I cant remember how I fell or why, I honestly thought I reached the last step...but the good news is I'm ok and I will continue to keep track of these things.
Saturday, July 3, 2010
My meds are here!
hey beauties!
I am so happy my meds are here. People do not realize the power of prayer. I work a job 40hrs per week with no benefits and I was stressed out worrying how am I going to afford this medication? God is good because the company has an Access program which is for people with MS that are uninsured..I was approved! :D
So the next thing to happen is for me to receive training from the nurse on how to use the syringe for the injections. I have to do them once a week..yikes!!! but my parents, bf and bff will be there for support and to train with me :D
Along with me starting the meds, I have to change my eating habits too. I am going to cut back on the red meats and grains :( I love me some hamburgers (homemade not mcdonalds etc) and I love pasta!! Even though I eat whole wheat pasta and bread I still want to cut back my intake. I believe I will see a difference in how I look and feel :D
With the information given to me about Avonex I received a black journal book, in which I will track how each day is going with the meds but I'm also going to track how my eating habits are too. I read many place where they said that certain foods are triggers for excaberations.
I'll keep a post on any new updates..Thanks to those who follow this blog I appreciate it ♥
I am so happy my meds are here. People do not realize the power of prayer. I work a job 40hrs per week with no benefits and I was stressed out worrying how am I going to afford this medication? God is good because the company has an Access program which is for people with MS that are uninsured..I was approved! :D
So the next thing to happen is for me to receive training from the nurse on how to use the syringe for the injections. I have to do them once a week..yikes!!! but my parents, bf and bff will be there for support and to train with me :D
Along with me starting the meds, I have to change my eating habits too. I am going to cut back on the red meats and grains :( I love me some hamburgers (homemade not mcdonalds etc) and I love pasta!! Even though I eat whole wheat pasta and bread I still want to cut back my intake. I believe I will see a difference in how I look and feel :D
With the information given to me about Avonex I received a black journal book, in which I will track how each day is going with the meds but I'm also going to track how my eating habits are too. I read many place where they said that certain foods are triggers for excaberations.
I'll keep a post on any new updates..Thanks to those who follow this blog I appreciate it ♥
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