hey beauties,
Today wasn't the best day but because of the wonderful people in my life I am able to continue to fight. This seems so crazy to me but I was so angry today and I wanted to punch something and I broke down when it became hard to ball up my fist :(.
However after taking avonex and taking a 3 hour nap I was able to gain more strength. but the weakness and pain in my limbs are still present. I will say though this week I was able to wear high heels :D!!!
The one frustration I have is that people assume that because I am on medication that I shouldn't feel any of the symptoms. I know I shouldn't get mad because they do not know but the symptoms are still here and all I can do is pray and smile whenever I can. However I appreciate their concern so I'm still blessed anyway :D
Saturday, August 21, 2010
Tuesday, August 17, 2010
She got attititude!
hey beauties!
I know the mood changes is something not only common with MS, PMS (ironic?lol) but just being a woman!!!and at times I do just have one of those days. Unfortunately today was a day like that. It just seemed like almost every left and right something was "poppin" up. I am now relaxed and calm but smiling and breathing is key.
The heat is unfortunately still not my friend but I do enjoy the summer. I love hearing the crickets at night, the silence.. During the summer nights strolling on the boardwalk is so amazing, listening to the waves rock in every emotion. I get that feeling that God is present :) Loves it!
I am learning to continue to walk forward, push my shoulders back, keep my chin up listen to my body (do's and don'ts), stay hydrated, and smile even when it hurts :)
Check u later beauties!
I know the mood changes is something not only common with MS, PMS (ironic?lol) but just being a woman!!!and at times I do just have one of those days. Unfortunately today was a day like that. It just seemed like almost every left and right something was "poppin" up. I am now relaxed and calm but smiling and breathing is key.
The heat is unfortunately still not my friend but I do enjoy the summer. I love hearing the crickets at night, the silence.. During the summer nights strolling on the boardwalk is so amazing, listening to the waves rock in every emotion. I get that feeling that God is present :) Loves it!
I am learning to continue to walk forward, push my shoulders back, keep my chin up listen to my body (do's and don'ts), stay hydrated, and smile even when it hurts :)
Check u later beauties!
Saturday, August 14, 2010
trader joes sunflowerseed butter
Has anyone tried this yet? My mom purchased it from trader joes and I am in love with it. it is definitely an alternative to peanut butter :D
Wednesday, August 4, 2010
MRI Update
Hey beauties!
So I had my second MRI back in june with Contrast. I am please to know that the lesions are not active and no "new" ones were present! woohoo Thank God, so happy about that :D. I also have done a month on avonex which has been pretty good, I still have aches and burning pains in my arms and legs but I'm managing. The neuro just gave me a prescription for the pain that should help me when I feel like that. Nothing else really going on..I will update any other news :D
later beauties
So I had my second MRI back in june with Contrast. I am please to know that the lesions are not active and no "new" ones were present! woohoo Thank God, so happy about that :D. I also have done a month on avonex which has been pretty good, I still have aches and burning pains in my arms and legs but I'm managing. The neuro just gave me a prescription for the pain that should help me when I feel like that. Nothing else really going on..I will update any other news :D
later beauties
Wednesday, July 28, 2010
25 years young
Hey beauties!
So this past friday 7/23 was my 25th birthday! I must say I am truly blessed to have made it this far in life. I am so grateful for my boyfriend,parents, best friends and host of coworkers and family members. My coworkers gave me a surprise 25th bday luncheon and it really made me cry tears of joy. With everything going on this year I just had no idea they were planning it for weeks!!!
My boyfriend took me to a great dinner and we even danced a little. I had alot of fun. I received many gifts and birthday wishes. Hmmm never knew 25 could taste so good! ;D
So this past friday 7/23 was my 25th birthday! I must say I am truly blessed to have made it this far in life. I am so grateful for my boyfriend,parents, best friends and host of coworkers and family members. My coworkers gave me a surprise 25th bday luncheon and it really made me cry tears of joy. With everything going on this year I just had no idea they were planning it for weeks!!!
My boyfriend took me to a great dinner and we even danced a little. I had alot of fun. I received many gifts and birthday wishes. Hmmm never knew 25 could taste so good! ;D
Friday, July 16, 2010
When it Rains it pours...but the Rainbow follows ♥
Hey beauties!
that is what I caught myself saying over and over..When it rains it pours. Sometimes the pain and numbness is out of control! Crying, huffing and puffing...but then somewhat of peace breaks through. The images that collide in my head such as the smile of my boyfriend, my wonderful hard working parents and brother, my best and close friends hugs, the laughter of their children along with my Goddaughter. That's when the rainbow peeks through after the rain.
MS affects not only the person who is dx with it but also all of the loved ones. I try to remember, as hard as this may be for me, I know it is rough on my loved ones as well. God is so good though because we are such a great support system. I know God has a big plan for us, and I am hanging in there for the journey!
Many blessings beauties
that is what I caught myself saying over and over..When it rains it pours. Sometimes the pain and numbness is out of control! Crying, huffing and puffing...but then somewhat of peace breaks through. The images that collide in my head such as the smile of my boyfriend, my wonderful hard working parents and brother, my best and close friends hugs, the laughter of their children along with my Goddaughter. That's when the rainbow peeks through after the rain.
MS affects not only the person who is dx with it but also all of the loved ones. I try to remember, as hard as this may be for me, I know it is rough on my loved ones as well. God is so good though because we are such a great support system. I know God has a big plan for us, and I am hanging in there for the journey!
Many blessings beauties
Sunday, July 11, 2010
1st day of Avonex
Yesterday I started my first day of Avonex. The nurse, Veronica, came over to train my parents, one of my best friends, my darling boyfriend and myself how to inject the drug. It went pretty well and having my support group really helped me hold it together. I feel like God knew what he was doing when he made us. I'm really blessed to have wonderful parents,an amazing boyfriend and great best friends.
I say all was well for most of that evening, my legs were bothering me but not unbearable at least until I got home after dinner....
My darling boyfriend brought me home, I wanted to take a shower so that I could relax. Now if anyone knows me knows I love hot steamy showers however with being diagnosed, I can no longer do the extreme hot environments because it can cause an episode to happen. So that means no HOT showers, no saunas and I have to even becareful when I'm outside now during the summer. So as I took my shower it was on warm, I was doing ok my legs were still a lil wobbly but I thought I was fine. Until I was drying myself off and my legs gave out on me :( .
I cried, my mom heard me and said what happened and I told her that my legs gave out on me. And she got sad but what else are you left to do? I got myself together and got UP. Yes it hurt my knees when I fell, Yes once again I felt embarrassed however I cant just stay there.
I was told that one side effect of the disease modifying drugs are depression. Personally, I feel it is real easy for a professional to slap many labels to people who have a condition. I feel like anytime you have change in your element or you do not operate like your "usual" self, anyone could be sadden by that. I want to be a fighter against the disease. Yes I will get knocked down, mentally and physically but I'm refusing to stay down.
I pray that God continues to give me strength. I am so blessed and happy by His Grace in which that has gotten me this far. I am once again mentioned blessed for my loved ones, they give me the inspiration to proceed to carry on. I loved them more than they will ever know. Until next time :D
Later beauties
Nikki
I say all was well for most of that evening, my legs were bothering me but not unbearable at least until I got home after dinner....
My darling boyfriend brought me home, I wanted to take a shower so that I could relax. Now if anyone knows me knows I love hot steamy showers however with being diagnosed, I can no longer do the extreme hot environments because it can cause an episode to happen. So that means no HOT showers, no saunas and I have to even becareful when I'm outside now during the summer. So as I took my shower it was on warm, I was doing ok my legs were still a lil wobbly but I thought I was fine. Until I was drying myself off and my legs gave out on me :( .
I cried, my mom heard me and said what happened and I told her that my legs gave out on me. And she got sad but what else are you left to do? I got myself together and got UP. Yes it hurt my knees when I fell, Yes once again I felt embarrassed however I cant just stay there.
I was told that one side effect of the disease modifying drugs are depression. Personally, I feel it is real easy for a professional to slap many labels to people who have a condition. I feel like anytime you have change in your element or you do not operate like your "usual" self, anyone could be sadden by that. I want to be a fighter against the disease. Yes I will get knocked down, mentally and physically but I'm refusing to stay down.
I pray that God continues to give me strength. I am so blessed and happy by His Grace in which that has gotten me this far. I am once again mentioned blessed for my loved ones, they give me the inspiration to proceed to carry on. I loved them more than they will ever know. Until next time :D
Later beauties
Nikki
Subscribe to:
Posts (Atom)